Recent Activity
Activity stream for all registered members at Science for ME.
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Jonathan Edwards replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:05 PM -
Yann04 liked ahimsa's post in the thread USA: News from #MEAction.
News from #MEAction, from a post on Bluesky by Jaime Seltzer: (line breaks added) "#MEAction’s narrative activity study with Mayo...
Jun 2, 2024 at 8:05 PM -
Yann04 liked rvallee's post in the thread USA: News from #MEAction.
There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's...
Jun 2, 2024 at 8:05 PM -
JemPD liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM -
Yann04 liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM -
JemPD replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:04 PM -
rvallee replied to the thread USA: News from #MEAction.
There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's...
Jun 2, 2024 at 8:01 PM -
Trish replied to the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 7:45 PM -
Trish liked forestglip's post in the thread GPT for ME/CFS Questions.
Potentially I could instruct it to only use MEpedia for objective facts, like what researchers work at such and such organization, or...
Jun 2, 2024 at 7:44 PM -
Trish liked JemPD's post in the thread GPT for ME/CFS Questions.
I not sure i feel comfortable with MEpedia being the main source... doesnt it have a bunch of stuff about CCI which is dodgy, as well as...
Jun 2, 2024 at 7:43 PM -
Hutan liked calande's post in the thread Ketogenic diet.
Soon two months into KD, with 4.2 mmol/L ketones right after getting up, but no energy (although I take electrolytes 3x/day and have...
Jun 2, 2024 at 7:42 PM
