Recent Activity
Activity stream for all registered members at Science for ME.
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SNT Gatchaman liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I just stumbled across this and sent it too my mum five minutes ago haha — cheers
Jun 12, 2024 at 9:04 PM -
SNT Gatchaman liked rvallee's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
But, they don't have that. An "understandable illness model" is just nonsense, Scientology's "ghosts of dead aliens" is an...
Jun 12, 2024 at 9:03 PM -
Peter Trewhitt liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 12, 2024 at 9:02 PM -
Peter Trewhitt liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 12, 2024 at 9:02 PM -
Peter Trewhitt liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out...
Jun 12, 2024 at 9:01 PM -
Peter Trewhitt liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Umm. I know this difficulty well. It takes so much energy to try stuff and to think about it all and learn the new terminology and stuff.
Jun 12, 2024 at 9:01 PM -
rvallee replied to the thread Association between fatigue and depressive symptoms in persons with post-COVID-19 condition: a post hoc analysis, 2024, Kayla M. Teopiz et al.
Ask overlapping questions, get overlapping answers.: https://med-fom-ubcsad.sites.olt.ubc.ca/files/2013/11/QIDS-SR.pdf. How is it that...
Jun 12, 2024 at 9:01 PM -
Peter Trewhitt liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sunrise medical has them available on the quickie 300 M, which is a relatively small powerchair with a tight turning circle for indoor...
Jun 12, 2024 at 9:01 PM -
Dakota15 replied to the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
KQED: 'National Academies Pushes for New Definition of Long COVID' 'Long COVID afflicts an estimated 17 million Americans. We’ll talk...
Jun 12, 2024 at 9:01 PM -
Peter Trewhitt liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I would only be able to try some from home. I would have a very limited ability to try things out - just don't have the energy to...
Jun 12, 2024 at 9:01 PM -
Peter Trewhitt liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
On the tilt in space, I think even if it doesn’t go flat it’s very much better than a non tilt chair for back and neck comfort so I’d...
Jun 12, 2024 at 9:00 PM -
Peter Trewhitt liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Well a rep is going to come with the OT in a few weeks' time, and they'll be bringing 2 powerchairs apparently, just to start getting an...
Jun 12, 2024 at 9:00 PM -
Peter Trewhitt liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I think you’re right to think very carefully about what you want and need. What I’ve learned is that as a moderate to severely affected...
Jun 12, 2024 at 9:00 PM -
Peter Trewhitt liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
That's something to look forward to.
Jun 12, 2024 at 9:00 PM -
hinterland liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 8:59 PM
