Recent Activity

Activity stream for all registered members at Science for ME.

  1. Robert 1973 liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I was only able to skim it briefly but it looks like a good blog that identified many of the same issues discussed here on the S4ME...

    Jun 13, 2024 at 2:01 PM
  2. Joan Crawford liked forestglip's post in the thread : TV casting call for people living with ME/CFS.

    [MEDIA]

    Jun 13, 2024 at 2:01 PM
  3. Joan Crawford liked forestglip's post in the thread : TV casting call for people living with ME/CFS.

    That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...

    Jun 13, 2024 at 2:01 PM
  4. Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

    We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...

    Jun 13, 2024 at 2:01 PM
  5. cfsandmore liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...

    Jun 13, 2024 at 2:01 PM
  6. cfsandmore liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...

    13_Figure3a.jpg Jun 13, 2024 at 2:01 PM
  7. Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

    I did this for a while in the 80s. There is still an issue with getting to the range and back again.

    Jun 13, 2024 at 2:01 PM
  8. Joan Crawford liked Sean's post in the thread : TV casting call for people living with ME/CFS.

    I believe the correct term is 'bang stick'.

    Jun 13, 2024 at 2:00 PM
  9. Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

    That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...

    Jun 13, 2024 at 2:00 PM
  10. Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

    At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...

    Jun 13, 2024 at 2:00 PM
  11. Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

    Or ice skating for the over 100s in Costa Rica.

    Jun 13, 2024 at 2:00 PM
  12. Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.

    :rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...

    Jun 13, 2024 at 2:00 PM
  13. Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

    I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger

    Jun 13, 2024 at 1:59 PM
  14. Joan Crawford liked bobbler's post in the thread : TV casting call for people living with ME/CFS.

    I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines and...

    Jun 13, 2024 at 1:59 PM
  15. forestglip liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I was only able to skim it briefly but it looks like a good blog that identified many of the same issues discussed here on the S4ME...

    Jun 13, 2024 at 1:59 PM
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