Recent Activity
Activity stream for all registered members at Science for ME.
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Joan Crawford liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 2:00 PM -
Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 2:00 PM -
Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 2:00 PM -
Joan Crawford liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 2:00 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 2:00 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 1:59 PM -
Joan Crawford liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines and...
Jun 13, 2024 at 1:59 PM -
forestglip liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I was only able to skim it briefly but it looks like a good blog that identified many of the same issues discussed here on the S4ME...
Jun 13, 2024 at 1:59 PM -
Joan Crawford liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 1:59 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
'Inability to remember what you are supposed to be shooting at.' .
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
And the cognitive ones – 'inability to remember where you left the rifle'.
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
Rifle shooting? Especially the category where you can lie down?
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 13, 2024 at 1:58 PM
