Recent Activity
Activity stream for all registered members at Science for ME.
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SNT Gatchaman liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 4:17 AM -
bobbler liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I do wonder if mine weren’t whipped out (as was usual back then) because they weren’t “really” getting tonsillitis. As in, any sore...
Jun 12, 2024 at 4:10 AM -
forestglip liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 3:58 AM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 12, 2024 at 3:57 AM -
Joan Crawford liked csinclair02's post in the thread : TV casting call for people living with ME/CFS.
Runners? What the hell. Even when my condition was very mild, I couldn't run.
Jun 12, 2024 at 3:57 AM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...
Jun 12, 2024 at 3:57 AM -
horton6 liked ME/CFS Skeptic's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I think that would be the correct way to do this experiment. I believe the authors' significance testing is somewhat misleading as it...
Jun 12, 2024 at 3:49 AM -
MelbME replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 3:49 AM -
bobbler liked JohnTheJack's post in the thread What we're not being told about ME - UnHerd (Tom Chivers).
It is good, I think. He is very sympathetic. He also has a very good reputation as a science writer for coverage of crap studies. It's...
Jun 12, 2024 at 3:44 AM -
bobbler liked JemPD's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
This is now getting really far off topic, sorry mods, but i wonder if one's accent affects it. For example for me to say the letters...
Jun 12, 2024 at 3:42 AM -
bobbler liked Sean's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Always said pem, as in pen, just swap the n for an m. Keeping it short and simple is what acronyms are for, I thought. I don't have...
Jun 12, 2024 at 3:42 AM -
bobbler liked forestglip's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I thought the norm was P-E-M until I heard someone during the NIH research roadmap webinar say "pem", and I've grown to prefer it...
Jun 12, 2024 at 3:42 AM -
bobbler liked DigitalDrifter's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
So I've been saying it wrong all these years? Do you literally sound out post-exertional malaise every time you read PEM?
Jun 12, 2024 at 3:41 AM
