Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Binkie4's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Fantastic! This research team means business. I am so disappointed that I visited New York ( to see my son) last November, contacted...
Jun 2, 2024 at 8:23 PM -
Hutan liked SNT Gatchaman's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Discussing their unpublished results in purified IgG transfer from acute Covid and long Covid patients to mice — "So we're very, very...
Jun 2, 2024 at 8:22 PM -
Trish liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:19 PM -
Trish liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:19 PM -
rvallee replied to the thread News from Canada.
Sometimes questions just answer themselves: Mental health services aren't an option in most of those cases. They could be scarce, they...
Jun 2, 2024 at 8:13 PM -
Jonathan Edwards replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:05 PM -
Yann04 liked ahimsa's post in the thread USA: News from #MEAction.
News from #MEAction, from a post on Bluesky by Jaime Seltzer: (line breaks added) "#MEAction’s narrative activity study with Mayo...
Jun 2, 2024 at 8:05 PM -
Yann04 liked rvallee's post in the thread USA: News from #MEAction.
There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's...
Jun 2, 2024 at 8:05 PM -
JemPD liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM -
Yann04 liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM -
JemPD replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:04 PM -
rvallee replied to the thread USA: News from #MEAction.
There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's...
Jun 2, 2024 at 8:01 PM
