Recent Activity

Eleanor liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

Eleanor replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

or maybe she's just getting better.

Trish liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.

I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...

Trish liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.

This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...

Trish liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

Possibly James May liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

Possibly James May liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

Possibly James May liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

Possibly James May liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...

Robert 1973 replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

Possibly James May liked Amw66's post in the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..

I would have thought that this holds for many conditions , if not generally. When my sleep is affected my cognitive abilities tank ( and...

Turtle liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Turtle liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...

forestglip replied to the thread : TV casting call for people living with ME/CFS.

Should you maybe respect her wish to not publicize the presenter? If you're trying to keep a productive dialogue with her, it won't help...

Kitty replied to the thread Powered wheelchair that tilts for indoors and garden path UK.

How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...