Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Amw66's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..
It's a double bind in paediatrics in places where there are " specialist clinics" If you need academic dispensation / accommodations you...
Jun 13, 2024 at 5:37 AM -
Peter Trewhitt liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 5:37 AM -
Peter Trewhitt liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 5:37 AM -
Peter Trewhitt liked Eddie's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Probably not the right thread for it, but they did look at 197 unrelated hEDS patients a found a third has this kind of variant.
Jun 13, 2024 at 5:37 AM -
Peter Trewhitt liked rvallee's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
This is fine but really all it does is slap a seal of approval on the rough description that was mostly fleshed out in the very first...
Jun 13, 2024 at 5:36 AM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 13, 2024 at 5:34 AM -
Peter Trewhitt liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 5:34 AM -
Peter Trewhitt liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
I did this for a while in the 80s. There is still an issue with getting to the range and back again.
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 5:33 AM -
Peter Trewhitt liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 5:33 AM
