Recent Activity
Activity stream for all registered members at Science for ME.
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MEMarge liked Cinders66's post in the thread UK: New advocacy resource for people with ME in hospital.
To give context here For those who are not severe /Acutely aware of what people are facing in hospitals, this was written by the mother...
Jun 1, 2024 at 11:35 AM -
Dolphin liked Ravn's post in the thread News from Aotearoa/New Zealand and the Pacific Islands.
The ANZMES annual research grant application period is now open until 31 July 2024. See dedicated thread for details
Jun 1, 2024 at 11:33 AM -
Dolphin liked Deanne NZ's post in the thread NZ: ANZMES research grants & scholarships (starting 2023).
It would be so helpful if someone could put in an application based on doing research that documents the harms from GET/CBT & LP in the...
Jun 1, 2024 at 11:33 AM -
Dolphin liked Ravn's post in the thread NZ: ANZMES research grants & scholarships (starting 2023).
The ANZMES annual research grant & scholarship 2024 application period is now open; it closes 31 July 2024. Application details at link...
Jun 1, 2024 at 11:32 AM -
Kitty liked EndME's post in the thread Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences.
Four infusions and end-points were taken several weeks after infusions (infusions took place till week 10 and end of study visit occured...
Jun 1, 2024 at 11:28 AM -
Turtle liked Andy's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
In case it is useful. "A total of 14,789 (86.6%) participants met CCC and/or IOM/NAM criteria" Typing myalgic encephalomyelitis by...
Jun 1, 2024 at 11:28 AM -
Deanne NZ liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
If people who only met your description for a few years can be included, I'm one of them. I've spent around 12 – 13 years of my illness...
Jun 1, 2024 at 11:28 AM -
Cinders66 replied to the thread UK: New advocacy resource for people with ME in hospital.
To give context here For those who are not severe /Acutely aware of what people are facing in hospitals, this was written by the mother...
Jun 1, 2024 at 11:27 AM -
Kitty liked Yann04's post in the thread Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences.
The saline and generally the fact a decent chunk people with long covid get better with time.
Jun 1, 2024 at 11:27 AM -
Deanne NZ liked Ravn's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Have only been able to skim this thread but there seem to be 3 layers of discussion going on 1) outsiders' reactions to the illness and...
Jun 1, 2024 at 11:25 AM -
Deanne NZ liked EndME's post in the thread What are the necessary conditions and criteria for a theoretical model of ME/CFS?.
Thanks a lot for sharing! I'm very much looking forward to reading it once it is published. With AI classifiers seemingly becoming the...
Jun 1, 2024 at 11:25 AM -
Deanne NZ liked MelbME's post in the thread What are the necessary conditions and criteria for a theoretical model of ME/CFS?.
We have a paper submitted to a Nature journal that you will probably be interested in. We're hoping it gets published soon. We looked at...
Jun 1, 2024 at 11:24 AM -
Yann04 liked EndME's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
This is not the first time GFAP has appeared in the LC literature (see for instance Neurofilament light chain and glial fibrillary acid...
Jun 1, 2024 at 11:22 AM
