Recent Activity
Activity stream for all registered members at Science for ME.
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forestglip liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 3:06 AM -
bobbler replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 3:04 AM -
JemPD liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:58 AM -
JemPD liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 2:58 AM -
JemPD liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 2:57 AM -
forestglip liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...
Jun 13, 2024 at 2:50 AM
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bobbler liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 2:49 AM -
bobbler liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 2:48 AM
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bobbler attached a file to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...
Jun 13, 2024 at 2:47 AM
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Sean replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 2:43 AM -
Missense liked Medfeb's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Posted on twitter by Jeanette Burmeister [MEDIA] Part 1 of my new 4-part article about NIH’s Effort Preference claim for ME. Read about...
Jun 13, 2024 at 2:41 AM -
Missense liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 13, 2024 at 2:41 AM -
Missense liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...
Jun 13, 2024 at 2:41 AM -
Missense liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 2:41 AM
