Recent Activity

Activity stream for all registered members at Science for ME.

  1. Yann04 liked Jonathan Edwards's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    What is Dr Cefai's role in the project? I missed that.

    Jun 13, 2024 at 1:33 PM
  2. MrMagoo liked forestglip's post in the thread : TV casting call for people living with ME/CFS.

    That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...

    Jun 13, 2024 at 1:32 PM
  3. MrMagoo liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.

    I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...

    Jun 13, 2024 at 1:32 PM
  4. Eleanor liked Jonathan Edwards's post in the thread Esther Crawley.

    I am from Vulcan, like Mr Spock. I had my ears done a while back. Garner (in his professional capacity) is from Woof, an interesting...

    Jun 13, 2024 at 1:30 PM
  5. Eleanor liked Eddie's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    The sample size was so small that by hunting around in the data you could have found a way to support any number of hypothesis....

    Jun 13, 2024 at 1:29 PM
  6. Eleanor liked sneyz's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...

    Jun 13, 2024 at 1:29 PM
  7. Eleanor liked forestglip's post in the thread Clinical and CSF single-cell profiling of post-COVID-19 cognitive impairment 2024 Hu et al.

    Psychology Today: Long COVID Looks Like Acute Infection in the Brain 12 June 2024 By Alison Escalante M.D. Link

    Jun 13, 2024 at 1:29 PM
  8. JellyBabyKid liked Jonathan Edwards's post in the thread Esther Crawley.

    I am from Vulcan, like Mr Spock. I had my ears done a while back. Garner (in his professional capacity) is from Woof, an interesting...

    Jun 13, 2024 at 1:29 PM
  9. JellyBabyKid liked Peter Trewhitt's post in the thread Esther Crawley.

    @dave30th has posted on Prof Crawley’s retirement in his Trial by Error Series: Trial By Error: Professor Esther Crawley, Bristol...

    Jun 13, 2024 at 1:28 PM
  10. forestglip liked sneyz's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...

    Jun 13, 2024 at 1:27 PM
  11. JellyBabyKid liked forestglip's post in the thread : TV casting call for people living with ME/CFS.

    [MEDIA]

    Jun 13, 2024 at 1:27 PM
  12. sneyz replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...

    Jun 13, 2024 at 1:27 PM
  13. forestglip replied to the thread Open Medicine Foundation (OMF).

    What metric(s) will you use to track how bad a patient's ME is?

    Jun 13, 2024 at 1:25 PM
  14. Simon M liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...

    Jun 13, 2024 at 1:23 PM
  15. Simon M liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...

    Jun 13, 2024 at 1:22 PM
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