Recent Activity
Activity stream for all registered members at Science for ME.
-
Turtle liked mango's post in the thread Trial Report Low Vasopressin in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Huhmar/Bragée/Polo.
Patienternas törst ledde forskaren till viktig upptäckt https://www.bragee.se/patienternas-torst-ledde-till-viktig-upptackt
Jun 12, 2024 at 8:06 AM -
MEMarge liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...
Jun 12, 2024 at 8:04 AM -
MEMarge liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 8:04 AM -
Trish liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 8:00 AM -
Turtle liked SNT Gatchaman's post in the thread NIH study - where to start?.
#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...
Jun 12, 2024 at 7:59 AM -
Jonathan Edwards replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...
Jun 12, 2024 at 7:56 AM -
Turtle liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 7:50 AM -
JemPD liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:38 AM -
Amw66 liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 7:34 AM -
Amw66 liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 7:31 AM -
Amw66 liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...
Jun 12, 2024 at 7:29 AM -
Amw66 liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...
Jun 12, 2024 at 7:28 AM -
Peter Trewhitt liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 7:20 AM -
Peter Trewhitt liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 12, 2024 at 7:20 AM -
Peter Trewhitt liked oldtimer's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
PEM pronounced as an acronym (rather than the initialised P-E-M) sounds silly to my ear. When I first heard it I thought it must be a...
Jun 12, 2024 at 7:20 AM
