Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 10:53 PM -
Kitty liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I just stumbled across this and sent it too my mum five minutes ago haha — cheers
Jun 12, 2024 at 10:53 PM -
Kitty liked SNT Gatchaman's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
@Yann04 In case you haven't seen this yet Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome (2024, Preprint:...
Jun 12, 2024 at 10:53 PM -
Kitty liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 12, 2024 at 10:52 PM -
Kitty liked MSEsperanza's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Apologies for just popping in -- not able to participate in the discussion but the question about what could doctors do to help people...
Jun 12, 2024 at 10:52 PM -
Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 12, 2024 at 10:52 PM -
alktipping liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 10:52 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To be honest, having a chat with a professional might just be what you need. I knew I was in trouble for a few years, but work,...
Jun 12, 2024 at 10:52 PM -
alktipping liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
:) I love it then!:) apologies for being slow there
Jun 12, 2024 at 10:51 PM -
alktipping liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Nope, my asthma yearly review specifically includes a plan, and written so you take it away, for when you have an asthma attack. And the...
Jun 12, 2024 at 10:51 PM -
Kitty liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The times that I've used the services of private specialists, it hasn't been about managing the core features of ME. I've needed help...
Jun 12, 2024 at 10:51 PM -
Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 12, 2024 at 10:51 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...
Jun 12, 2024 at 10:50 PM -
Kitty liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Hmmm. I know most of this community is of the opinion that the diagnoses such as MCAS and EDSh are not legitimate. But I’m wondering...
Jun 12, 2024 at 10:50 PM -
alktipping liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in...
Jun 12, 2024 at 10:50 PM
