Recent Activity
Activity stream for all registered members at Science for ME.
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Amw66 liked Sean's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the...
Jun 13, 2024 at 7:44 AM -
Amw66 liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 7:44 AM
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Amw66 liked JohnTheJack's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I think this study inadvertently raises a question they have never been able to answer and one I have thought about for some time. It...
Jun 13, 2024 at 7:42 AM -
Amw66 liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...
Jun 13, 2024 at 7:41 AM -
Amw66 liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 7:37 AM -
Amw66 liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 7:35 AM -
Wyva liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 7:34 AM -
Wyva liked rvallee's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 13, 2024 at 7:34 AM -
bobbler liked Nightsong's post in the thread Esther Crawley.
I edited my post just about a minute before you replied, Trish, but I meant insofar as she's able to directly affect the lives of...
Jun 13, 2024 at 7:31 AM -
Wyva liked Dakota15's post in the thread News from the USA, United States of America.
(sharing in here too, but Mods you can delete if you prefer just in other thread) KQED: 'National Academies Pushes for New Definition...
Jun 13, 2024 at 7:28 AM -
Turtle liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 7:10 AM -
Turtle liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 7:10 AM
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JellyBabyKid liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 7:02 AM
