Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...
Jun 3, 2024 at 3:35 AM -
Trish liked Amw66's post in the thread Maeve Boothby O'Neill - articles about her life, death and inquest.
[MEDIA] #InquestUpdate my daughter died from medical and local authority neglect of #VerySevereME Oct 2021. 2 weeks full hearings...
Jun 3, 2024 at 3:34 AM -
bobbler liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I am right that Keith is a patient arent I? just suddenly had a moment of doubt but dont i remember that Wessely etc discounted his...
Jun 3, 2024 at 3:34 AM -
bobbler liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 3, 2024 at 3:34 AM -
Atlas liked Janna Moen PhD's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
This is a very uninformed answer. He appears to be conflating the concept of reward-prediction error in dopamine processing and the...
Jun 3, 2024 at 3:26 AM -
bobbler liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 3, 2024 at 3:17 AM -
bobbler replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
this
Jun 3, 2024 at 3:16 AM -
bobbler liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 3, 2024 at 3:11 AM -
bobbler liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
This really gets to me. Paternalism at its worst. Michael J. Fox says “Parkinson's patients are the experts on what we have. We have a...
Jun 3, 2024 at 3:11 AM -
bobbler liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The monitoring should be possible, but what would you do with it? For asthma and diabetes we have well documented treatments that...
Jun 3, 2024 at 3:10 AM
