Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 9:46 AM -
Trish liked Sean's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they...
Jun 13, 2024 at 9:45 AM -
Trish liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 9:44 AM -
Lindberg liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 9:44 AM
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Hutan liked SNT Gatchaman's post in the thread Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up FDG-PET study, 2024, Horowitz+.
Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up 18FFDG-PET study...
Jun 13, 2024 at 9:44 AM -
Lindberg liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 9:44 AM -
Trish liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 9:44 AM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
I did this for a while in the 80s. There is still an issue with getting to the range and back again.
Jun 13, 2024 at 9:44 AM -
Trish liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 9:43 AM -
Trish liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 9:43 AM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 9:43 AM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 9:43 AM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 9:43 AM -
Trish liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 9:42 AM
