Recent Activity
Activity stream for all registered members at Science for ME.
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Starlight liked Peter Trewhitt's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Perhaps winning the lottery would be a better example, as entering a lottery has a real cost and the harder you try to win the greater...
Jun 12, 2024 at 11:45 PM -
Starlight liked Peter Trewhitt's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
The advocates for ‘recovery’ seem to be saying, because some people recover everyone should be treated with GET/CBT or some variant of...
Jun 12, 2024 at 11:44 PM -
Starlight liked JohnTheJack's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I think this study inadvertently raises a question they have never been able to answer and one I have thought about for some time. It...
Jun 12, 2024 at 11:44 PM -
alktipping liked Eddie's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Probably not the right thread for it, but they did look at 197 unrelated hEDS patients a found a third has this kind of variant.
Jun 12, 2024 at 11:37 PM -
alktipping liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 11:37 PM -
alktipping liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 12, 2024 at 11:36 PM -
alktipping liked MSEsperanza's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Apologies for just popping in -- not able to participate in the discussion but the question about what could doctors do to help people...
Jun 12, 2024 at 11:35 PM -
alktipping liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 12, 2024 at 11:35 PM -
alktipping liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out...
Jun 12, 2024 at 11:33 PM -
rvallee liked Dakota15's post in the thread News from the USA, United States of America.
Dr. Jeanne Marrazzo (NIAID Director) at Demystifying Long COVID Conference last week in Boston on LC: "As you can tell I'm very...
Jun 12, 2024 at 11:32 PM -
rvallee liked Ash's post in the thread News from the USA, United States of America.
Yes indeed. If anything I’d say that they are very much herding us all back into the burning building of highly infectious lethal...
Jun 12, 2024 at 11:32 PM -
alktipping liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 12, 2024 at 11:31 PM -
rvallee replied to the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 12, 2024 at 11:31 PM -
alktipping liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 12, 2024 at 11:31 PM
