Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 10:49 PM -
Kitty liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 10:48 PM -
MrMagoo liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines and...
Jun 12, 2024 at 10:48 PM -
Kitty liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 10:47 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc
Jun 12, 2024 at 10:47 PM -
Kitty liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 10:47 PM -
Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 10:47 PM -
Kitty liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 10:46 PM -
Kitty liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
That would be a fruitful subject for an incisive and intrepid journalist. How can NHS Drs provide safe and ethical services to the...
Jun 12, 2024 at 10:46 PM -
Kitty liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 12, 2024 at 10:46 PM -
MrMagoo liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 12, 2024 at 10:46 PM -
rvallee liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...
Jun 12, 2024 at 10:45 PM -
MrMagoo replied to the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 12, 2024 at 10:45 PM
