Recent Activity
Activity stream for all registered members at Science for ME.
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Robert 1973 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Thanks, yes it is softened in a few ways, but I still think problematic.
Jun 12, 2024 at 5:09 PM -
Robert 1973 liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I've pulled a copy of the old article from my browser's cache. Here's the diff: That is a welcome change as many desperate pwLC might...
Jun 12, 2024 at 5:08 PM -
LJord liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 5:08 PM -
Robert 1973 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...
Jun 12, 2024 at 5:06 PM -
forestglip liked daftasabrush's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
That's brilliant! I had no idea this was possible. It will be really useful. The HitCounters extension is no longer being updated by the...
Jun 12, 2024 at 5:05 PM -
forestglip liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 5:04 PM -
Jonathan Edwards replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Thanks, yes it is softened in a few ways, but I still think problematic.
Jun 12, 2024 at 5:00 PM -
LJord liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 4:48 PM -
Helene liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 4:48 PM -
LJord liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 4:47 PM -
Jonathan Edwards replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...
Jun 12, 2024 at 4:45 PM -
EndME liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 4:42 PM -
Trish liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 4:39 PM
