Recent Activity
Activity stream for all registered members at Science for ME.
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Joan Crawford liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 9:22 AM -
Joan Crawford liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 12, 2024 at 9:20 AM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:19 AM -
Trish liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:18 AM -
janice liked Lidia Thompson's post in the thread United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service.
Indeed. Your pseudonym, 'Sly Saint' evidently describes you well :thumbup:
Jun 12, 2024 at 9:18 AM -
janice liked Trish's post in the thread United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service.
Indeed, you are very good at ferreting out the awful stuff still going on. Thank you.
Jun 12, 2024 at 9:18 AM -
janice liked Sly Saint's post in the thread United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service.
and well done me for finding it in the first place
Jun 12, 2024 at 9:18 AM -
janice liked Joan Crawford's post in the thread United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service.
Charles is spot on here - there is no compulsion to use the wording - it's a generic format that NHS services can use, adapt, modify to...
Jun 12, 2024 at 9:18 AM -
Trish liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 9:18 AM -
janice liked Trish's post in the thread United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service.
ME Association responds to disappointing reply from Oxford NHS Trust about ‘inaccurate’ and ‘offensive’ job advert August 21, 2023 The...
Jun 12, 2024 at 9:18 AM -
Trish liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 12, 2024 at 9:17 AM -
Peter Trewhitt liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 9:17 AM -
Trish liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 9:17 AM -
Peter Trewhitt liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:16 AM -
Trish liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Vocational rehabilitation for Long Covid: a roadmap for recovery Parkin, A; Rayner, C; Mir, G; O'Connor, R J Academic Department of...
Jun 12, 2024 at 9:16 AM
