Recent Activity
Activity stream for all registered members at Science for ME.
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Turtle liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 3:37 PM -
Turtle liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:37 PM -
Wyva liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 3:31 PM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 12, 2024 at 3:29 PM -
bobbler liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 12, 2024 at 3:28 PM -
bobbler liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:28 PM -
bobbler liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 3:28 PM -
bobbler liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 12, 2024 at 3:26 PM -
rvallee liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 3:25 PM
