Recent Activity

Hutan liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...

Hutan liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...

Hutan liked Nightsong's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

Some quotes from from a post to Agle's mailing list with details of the PI:

Michelle liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...

Michelle liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

[ATTACH] Also:

Michelle liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Hutan liked Nightsong's post in the thread Esther Crawley.

I edited my post just about a minute before you replied, Trish, but I meant insofar as she's able to directly affect the lives of...

Hutan liked Trish's post in the thread Esther Crawley.

Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...

Hutan liked Nightsong's post in the thread Esther Crawley.

Also if you retain your licence you also have to engage in the regular appraisals and 5-year revalidations that were introduced just...

Hutan liked Jonathan Edwards's post in the thread Esther Crawley.

If she qualified in 1991 should would be expected to be 58 but if for some reason she completed her medical training late, maybe having...

Hutan liked Trish's post in the thread Esther Crawley.

I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds...

Hutan liked Jonathan Edwards's post in the thread Esther Crawley.

It is the obvious thing to do unless you want to run private practice. To continue having the right to practice you need to ay GMC fees...

bobbler liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...

bobbler liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...

Michelle liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...