Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked rvallee's post in the thread Association between fatigue and depressive symptoms in persons with post-COVID-19 condition: a post hoc analysis, 2024, Kayla M. Teopiz et al.
Ask overlapping questions, get overlapping answers.: https://med-fom-ubcsad.sites.olt.ubc.ca/files/2013/11/QIDS-SR.pdf. How is it that...
Jun 13, 2024 at 2:06 AM -
Sean liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
[ATTACH] Also:
Jun 13, 2024 at 2:06 AM -
Dolphin liked SNT Gatchaman's post in the thread Preprint Conceptual framework of episodic disability in the context of [LC]: Findings from a community-engaged international qualitative study, 2024, O’Brien+.
Jun 13, 2024 at 2:05 AM -
Sean liked rvallee's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
This is fine but really all it does is slap a seal of approval on the rough description that was mostly fleshed out in the very first...
Jun 13, 2024 at 2:05 AM -
Sean liked Dakota15's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
KQED: 'National Academies Pushes for New Definition of Long COVID' 'Long COVID afflicts an estimated 17 million Americans. We’ll talk...
Jun 13, 2024 at 2:05 AM -
Sean replied to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the...
Jun 13, 2024 at 2:04 AM -
Sean liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 1:59 AM -
Sean liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 1:58 AM -
Sean liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I live. It went OK for a while. Then it...
Jun 13, 2024 at 1:57 AM -
Sean replied to the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 1:57 AM -
alex3619 replied to the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I live. It went OK for a while. Then it...
Jun 13, 2024 at 1:57 AM -
Sean liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 1:56 AM -
Sean liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines and...
Jun 13, 2024 at 1:56 AM -
Sean liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 1:55 AM -
Sean liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
Jun 13, 2024 at 1:55 AM