Recent Activity
Activity stream for all registered members at Science for ME.
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Lou B Lou liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 12:52 AM -
forestglip replied to the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 12:52 AM -
Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 12:51 AM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 12:51 AM -
Lou B Lou liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 12:50 AM -
Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 13, 2024 at 12:49 AM -
Lou B Lou liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:49 AM -
Kitty replied to the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 12:49 AM -
Jaybee00 replied to the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 12:44 AM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 12:38 AM -
forestglip liked EndME's post in the thread N-acetylglucosamine inhibits inflammation and neurodegeneration markers in multiple sclerosis: a mechanistic trial, 2023, Demetriou et al.
N-acetylglucosamine inhibits inflammation and neurodegeneration markers in multiple sclerosis: a mechanistic trial Abstract Background...
Jun 13, 2024 at 12:27 AM -
SNT Gatchaman liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:23 AM -
forestglip liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:23 AM -
Missense liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 12:21 AM -
Missense liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 13, 2024 at 12:19 AM
