Recent Activity

Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    Just gonna provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]

    upload_2024-6-13_12-5-36.png upload_2024-6-13_12-6-3.png Jun 13, 2024 at 12:18 PM
  2. Peter Trewhitt liked JohnTheJack's post in the thread Esther Crawley.

    I agree with Trish. I think a certain caution is advisable. It may (or may not, I have no idea) be that she has, for example, a serious...

    Jun 13, 2024 at 12:17 PM
  3. Peter Trewhitt liked SNT Gatchaman's post in the thread Esther Crawley.

    Yes, only one of them is a professor of evidence-based medicine.

    Jun 13, 2024 at 12:17 PM
  4. Peter Trewhitt liked Trish's post in the thread Esther Crawley.

    Indeed, not just poles apart, planets apart. I'm not sure what planet Garner is on.

    Jun 13, 2024 at 12:16 PM
  5. forestglip liked Robert 1973's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    This is Jeanette Burmeister’s summary of part 2 of her blog: https://threadreaderapp.com/thread/1800987624619782625.html @dave30th Are...

    Jun 13, 2024 at 12:16 PM
  6. Peter Trewhitt liked Ken Turnbull's post in the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.

    Of no scientific note: the company has changed name to "Lumia". The press release doesn't say why.

    Jun 13, 2024 at 12:16 PM
  7. Hutan liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    Normal good practice chairing of any meeting especially larger groups where people are remote would be to explain when questions will be...

    Jun 13, 2024 at 12:16 PM
  8. forestglip liked MSEsperanza's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Thank you to everyone working on dissecting the study. In skimming-mode only and most is way beyond me anyway but stumbled across a...

    Jun 13, 2024 at 12:16 PM
  9. Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    Perhaps it is meant to keep Tyson in line and stop her further abusing members of the patient community?

    Jun 13, 2024 at 12:16 PM
  10. Hutan liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience...

    Jun 13, 2024 at 12:15 PM
  11. Hutan liked Lou B Lou's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    "In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...

    Jun 13, 2024 at 12:15 PM
  12. LJord liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.

    I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...

    Jun 13, 2024 at 12:15 PM
  13. LJord liked MelbME's post in the thread Open Medicine Foundation (OMF).

    Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...

    Jun 13, 2024 at 12:14 PM
  14. Hutan liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    ME Research UK post on the 4 workshops: Research Workshops – attendance invitation...

    Jun 13, 2024 at 12:13 PM
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