Recent Activity
Activity stream for all registered members at Science for ME.
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Keela Too liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 12:47 PM -
Keela Too liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 12:47 PM -
Eddie replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The sample size was so small that by hunting around in the data you could have found a way to support any number of hypothesis....
Jun 13, 2024 at 12:47 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
What is Dr Cefai's role in the project? I missed that.
Jun 13, 2024 at 12:47 PM -
Keela Too liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 12:47 PM
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Keela Too liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 12:46 PM -
Jonathan Edwards replied to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
What is Dr Cefai's role in the project? I missed that.
Jun 13, 2024 at 12:46 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 13, 2024 at 12:44 PM -
forestglip liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 13, 2024 at 12:39 PM -
Eddie liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 12:37 PM -
MelbME liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 13, 2024 at 12:35 PM -
HolyScrod liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 12:33 PM -
HolyScrod liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 12:33 PM -
Jonathan Edwards replied to the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 13, 2024 at 12:31 PM -
LJord liked wingate's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 13, 2024 at 12:31 PM
