Recent Activity
Activity stream for all registered members at Science for ME.
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Jaybee00 replied to the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 12:44 AM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 12:38 AM -
forestglip liked EndME's post in the thread N-acetylglucosamine inhibits inflammation and neurodegeneration markers in multiple sclerosis: a mechanistic trial, 2023, Demetriou et al.
N-acetylglucosamine inhibits inflammation and neurodegeneration markers in multiple sclerosis: a mechanistic trial Abstract Background...
Jun 13, 2024 at 12:27 AM -
SNT Gatchaman liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:23 AM -
forestglip liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:23 AM -
Missense liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 12:21 AM -
Missense liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 13, 2024 at 12:19 AM -
Missense liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 13, 2024 at 12:19 AM -
Missense liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 13, 2024 at 12:16 AM -
Missense liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
Jun 13, 2024 at 12:14 AM -
Missense liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I...
Jun 13, 2024 at 12:14 AM -
Missense liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
'The only problem with that is that it is not fair to ask people to ask for help when nobody knows what would help. They just end up...
Jun 13, 2024 at 12:14 AM -
Missense liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 13, 2024 at 12:13 AM -
Missense liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...
Jun 13, 2024 at 12:12 AM -
Missense liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Out of curiosity what’s the issue with EDS. Isn’t it a group of genetically testable diseases — which would make the diagnosis...
Jun 13, 2024 at 12:12 AM
