Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked SNT Gatchaman's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
Oonagh Cousins & the dangers of the Lightning Process
Jun 13, 2024 at 5:44 AM -
Peter Trewhitt liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 5:43 AM -
Peter Trewhitt liked Jaybee00's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked forestglip's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
Device is Pixel 7, which Wikipedia says is 2400 × 1080.
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked daftasabrush's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
The Slack channel is invite only, I think you email the main MEpedia account to request adding. They need your email address I think to...
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked Sean's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the...
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 5:41 AM
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Peter Trewhitt liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 5:41 AM -
Peter Trewhitt liked Nightsong's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Some quotes from from a post to Agle's mailing list with details of the PI:
Jun 13, 2024 at 5:40 AM -
Peter Trewhitt liked rvallee's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 13, 2024 at 5:40 AM -
Peter Trewhitt liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 5:39 AM -
Peter Trewhitt liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...
Jun 13, 2024 at 5:39 AM
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Peter Trewhitt liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 5:38 AM -
Peter Trewhitt liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 5:38 AM
