Recent Activity

Peter Trewhitt liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.

The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...

Peter Trewhitt liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.

They're writing a paper... about having done a study? Which is already published? Which they recognize was not statistically...

Peter Trewhitt liked Andy's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.

Abstract The COgnitive behavioural therapy versus standardised medical care for adults with Dissociative non-Epileptic Seizures...

Peter Trewhitt liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

[ATTACH] Also:

Peter Trewhitt liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Peter Trewhitt liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...

Peter Trewhitt liked Kitty's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

In addition to the ethical issues here, reports like this should always say very clearly that a proportion of pwLC (including children)...

Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

Thanks, yes it is softened in a few ways, but I still think problematic.

Peter Trewhitt liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

I've pulled a copy of the old article from my browser's cache. Here's the diff: That is a welcome change as many desperate pwLC might...

Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...

Peter Trewhitt liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

Yes, it seems to have been amended for the better: Unfortunately, I don’t have a copy of the original article to compare so I’m...

Peter Trewhitt liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...

Wyva liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...

Peter Trewhitt liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

or maybe she's just getting better.

Peter Trewhitt liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...