Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...
Jun 12, 2024 at 10:44 PM -
Kitty liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 10:44 PM -
wingate liked Dakota15's post in the thread News from the USA, United States of America.
(sharing in here too, but Mods you can delete if you prefer just in other thread) KQED: 'National Academies Pushes for New Definition...
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
And the cognitive ones – 'inability to remember where you left the rifle'.
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
Ha Ha Ha!!!! Better clear the place first! Some pwme have serious visual/spatial impairments. And the CCC does mention as a...
Jun 12, 2024 at 10:44 PM -
Kitty liked Medfeb's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Posted on twitter by Jeanette Burmeister [MEDIA] Part 1 of my new 4-part article about NIH’s Effort Preference claim for ME. Read about...
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
Rifle shooting? Especially the category where you can lie down?
Jun 12, 2024 at 10:43 PM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
Jun 12, 2024 at 10:43 PM -
MrMagoo liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 12, 2024 at 10:43 PM -
rvallee liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
And that's the end of that possible source of stigma as far as the authors are concerned - when actually power differences and the...
Jun 12, 2024 at 10:43 PM -
Kitty liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines and...
Jun 12, 2024 at 10:42 PM
