Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 12:03 PM -
Possibly James May liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 12:03 PM -
Possibly James May liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...
Jun 12, 2024 at 12:02 PM -
Possibly James May liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...
Jun 12, 2024 at 12:02 PM -
Possibly James May liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 12:02 PM -
Robert 1973 replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 12:01 PM -
Possibly James May liked Amw66's post in the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..
I would have thought that this holds for many conditions , if not generally. When my sleep is affected my cognitive abilities tank ( and...
Jun 12, 2024 at 11:57 AM -
Turtle liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Jun 12, 2024 at 11:51 AM -
Turtle liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...
Jun 12, 2024 at 11:51 AM -
forestglip replied to the thread : TV casting call for people living with ME/CFS.
Should you maybe respect her wish to not publicize the presenter? If you're trying to keep an open dialogue with her, it won't help if...
Jun 12, 2024 at 11:49 AM -
Kitty replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 12, 2024 at 11:48 AM -
forestglip liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 11:42 AM -
forestglip liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 11:42 AM -
forestglip liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 11:41 AM -
forestglip liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 11:41 AM