Recent Activity
Activity stream for all registered members at Science for ME.
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Missense liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 1:41 PM -
Missense liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 1:41 PM -
MrMagoo liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I too couldn’t access files but video recording worked.
Jun 13, 2024 at 1:40 PM -
MrMagoo liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Well that was useful (not) I tried to open one of the documents and got an access denied response.
Jun 13, 2024 at 1:40 PM -
MrMagoo liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
By email from the workshop organiser Monica Bolton: Dear attendee, Many thanks for attending the Clinical Trial Design in People...
Jun 13, 2024 at 1:40 PM -
MrMagoo liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
[MEDIA]
Jun 13, 2024 at 1:39 PM -
Missense liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 1:38 PM -
Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 1:38 PM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 1:38 PM -
Missense liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 1:37 PM -
Yann04 liked Jonathan Edwards's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
What is Dr Cefai's role in the project? I missed that.
Jun 13, 2024 at 1:33 PM -
MrMagoo liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 1:32 PM -
MrMagoo liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...
Jun 13, 2024 at 1:32 PM -
Eleanor liked Jonathan Edwards's post in the thread Esther Crawley.
I am from Vulcan, like Mr Spock. I had my ears done a while back. Garner (in his professional capacity) is from Woof, an interesting...
Jun 13, 2024 at 1:30 PM
