Recent Activity
Activity stream for all registered members at Science for ME.
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Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:12 PM -
Lou B Lou liked Mij's post in the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..
Optimizing sleep quality and pain syndromes was the only treatment my M.E doctor offered over 30yrs ago. He prescribed whatever it...
Jun 12, 2024 at 3:10 PM -
Lou B Lou liked Trish's post in the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..
It seems pointless to do such detailed cognitive testing but to rely on self reports for sleep quality.
Jun 12, 2024 at 3:10 PM -
Robert 1973 liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 3:09 PM -
Robert 1973 liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...
Jun 12, 2024 at 3:03 PM -
Kitty replied to the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:02 PM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 3:01 PM -
Kitty liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 3:01 PM -
Peter Trewhitt liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:00 PM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
Jun 12, 2024 at 3:00 PM
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Peter Trewhitt liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 3:00 PM
