Recent Activity
Activity stream for all registered members at Science for ME.
-
Theresa liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 11:14 AM -
Aroa liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 11:13 AM -
Trish liked Andy's post in the thread Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed [PPI]... 2024 Engelaar et al.
Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient...
Jun 13, 2024 at 11:13 AM -
Trish liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonne provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:11 AM
-
NelliePledge liked SNT Gatchaman's post in the thread Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up FDG-PET study, 2024, Horowitz+.
Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up 18FFDG-PET study...
Jun 13, 2024 at 11:10 AM -
John Mac liked LJord's post in the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.
I attended an open house yesterday. This device is amazing. I’m also impressed at the attention to detail of the people developing...
Jun 13, 2024 at 11:06 AM -
Yann04 attached a file to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonne provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:06 AM
-
NelliePledge liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 11:05 AM -
Robert 1973 liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...
Jun 13, 2024 at 11:05 AM -
FMMM1 liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 11:04 AM