Recent Activity
Activity stream for all registered members at Science for ME.
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rvallee liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 2:27 PM -
Sean liked Turtle's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
For years and years FND was conversion and now they can educate the patients out of it? Just 21% of patients (35 out of 166) did all 3...
Jun 12, 2024 at 2:24 PM -
Sean liked NelliePledge's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Tripe
Jun 12, 2024 at 2:24 PM -
Sean liked Andy's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Full title: Illness perceptions, experiences of stigma and engagement in functional neurological disorder (FND): exploring the role of...
Jun 12, 2024 at 2:24 PM -
Sean liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 2:23 PM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
Jun 12, 2024 at 2:23 PM
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Sean liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 12, 2024 at 2:23 PM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 12, 2024 at 2:23 PM -
Sean liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 2:22 PM -
Sean liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 2:22 PM -
Sean liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 2:22 PM -
Trish liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 2:22 PM -
Sean liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 2:22 PM -
Sean liked DMissa's post in the thread In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al.
ay, there’s the rub
Jun 12, 2024 at 2:21 PM
