Recent Activity
Activity stream for all registered members at Science for ME.
-
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 9:34 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...
Jun 12, 2024 at 9:33 PM -
Trish liked Andy's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Thread on HADS here, https://www.s4me.info/threads/the-hospital-anxiety-and-depression-scale-hads-a-discussion.10160/
Jun 12, 2024 at 9:31 PM -
Trish liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...
Jun 12, 2024 at 9:31 PM -
Trish liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...
Jun 12, 2024 at 9:30 PM -
Trish liked Yann04's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
I could see this being said by a BPS person. Imagine: but Long Covid is not a psychological illness, and such explanations of physical...
Jun 12, 2024 at 9:30 PM -
Trish liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
It could be a little more clear I guess: "but Long Covid is not a psychological illness, and such explanations of physical symptoms...
Jun 12, 2024 at 9:30 PM -
Trish liked rvallee's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
I don't think there's evidence of that. Psychological suffering is associated with inflammation and immune system alterations, but there...
Jun 12, 2024 at 9:30 PM -
Jonathan Edwards replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 9:30 PM -
Trish liked Kitty's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
What about when the subject moves their hands back so as not to make contact? That would be my instinctive reaction! :laugh:
Jun 12, 2024 at 9:29 PM -
Trish liked Hutan's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
Thanks @Wyva, so we have a whole batch of papers on poorly conceived studies to look forward to. When no cognitive dysfunction shows...
Jun 12, 2024 at 9:29 PM
