Recent Activity
Activity stream for all registered members at Science for ME.
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forestglip liked sneyz's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...
Jun 13, 2024 at 1:27 PM -
JellyBabyKid liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
[MEDIA]
Jun 13, 2024 at 1:27 PM -
sneyz replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...
Jun 13, 2024 at 1:27 PM -
forestglip replied to the thread Open Medicine Foundation (OMF).
What metric(s) will you use to track how bad a patient's ME is?
Jun 13, 2024 at 1:25 PM -
Simon M liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 13, 2024 at 1:23 PM -
Simon M liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 13, 2024 at 1:22 PM -
forestglip liked MelbME's post in the thread Open Medicine Foundation (OMF).
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...
Jun 13, 2024 at 1:22 PM -
forestglip replied to the thread : TV casting call for people living with ME/CFS.
[MEDIA]
Jun 13, 2024 at 1:22 PM -
EndME liked Jonathan Edwards's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
What is Dr Cefai's role in the project? I missed that.
Jun 13, 2024 at 1:21 PM -
EndME liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 1:20 PM -
EndME liked Peter Trewhitt's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Perhaps winning the lottery would be a better example, as entering a lottery has a real cost and the harder you try to win the greater...
Jun 13, 2024 at 1:19 PM -
EndME liked Peter Trewhitt's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
The advocates for ‘recovery’ seem to be saying, because some people recover everyone should be treated with GET/CBT or some variant of...
Jun 13, 2024 at 1:18 PM -
Amw66 liked forestglip's post in the thread Clinical and CSF single-cell profiling of post-COVID-19 cognitive impairment 2024 Hu et al.
Psychology Today: Long COVID Looks Like Acute Infection in the Brain 12 June 2024 By Alison Escalante M.D. Link
Jun 13, 2024 at 1:18 PM -
Amw66 liked SNT Gatchaman's post in the thread Clinical and CSF single-cell profiling of post-COVID-19 cognitive impairment 2024 Hu et al.
Corroborating blood findings in Cortical thickness alterations and systemic inflammation define long-COVID patients with cognitive...
Jun 13, 2024 at 1:18 PM
