Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I just stumbled across this and sent it too my mum five minutes ago haha — cheers
Jun 12, 2024 at 9:42 PM -
Trish liked SNT Gatchaman's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
@Yann04 In case you haven't seen this yet Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome (2024, Preprint:...
Jun 12, 2024 at 9:42 PM -
Trish liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 12, 2024 at 9:42 PM -
FMMM1 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Thanks, yes it is softened in a few ways, but I still think problematic.
Jun 12, 2024 at 9:42 PM -
Trish liked MSEsperanza's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Apologies for just popping in -- not able to participate in the discussion but the question about what could doctors do to help people...
Jun 12, 2024 at 9:42 PM -
FMMM1 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...
Jun 12, 2024 at 9:42 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 9:40 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 12, 2024 at 9:39 PM -
bobbler liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 12, 2024 at 9:39 PM -
Trish replied to the thread Esther Crawley.
I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds...
Jun 12, 2024 at 9:37 PM -
dave30th replied to the thread Esther Crawley.
really? If she qualified in 1991? I assumed mid-50s. Might have to correct my post although I said "presumably."
Jun 12, 2024 at 9:36 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 12, 2024 at 9:35 PM -
Jonathan Edwards replied to the thread Esther Crawley.
It is the obvious thing to do unless you want to run private practice. To continue having the right to practice you need to ay GMC fees...
Jun 12, 2024 at 9:35 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 9:34 PM -
FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...
Jun 12, 2024 at 9:33 PM
