Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 2:23 PM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
Jun 12, 2024 at 2:23 PM
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Sean liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 12, 2024 at 2:23 PM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 12, 2024 at 2:23 PM -
Sean liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 2:22 PM -
Sean liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 2:22 PM -
Sean liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 2:22 PM -
Trish liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 2:22 PM -
Sean liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 2:22 PM -
Sean liked DMissa's post in the thread In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al.
ay, there’s the rub
Jun 12, 2024 at 2:21 PM -
Sean liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
This is my favourite part, from the art therapy abstract: "The art therapy protocol consists of 6 sessions with the following themes:...
Jun 12, 2024 at 2:21 PM -
Sean liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
Some conference abstracts from The 30th National Scientific Assembly of the Hungarian Psychological Society from 2023 (book of abstracts...
Jun 12, 2024 at 2:21 PM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 2:19 PM -
Sean liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 2:19 PM
