Recent Activity
Activity stream for all registered members at Science for ME.
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Amw66 replied to the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 6:55 AM -
NelliePledge liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 6:53 AM -
bobbler liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 12, 2024 at 6:52 AM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 12, 2024 at 6:48 AM -
bobbler replied to the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenter Richsrd Whitehead too just offering more info and being gently enlightening. He’s a...
Jun 12, 2024 at 6:48 AM -
bobbler replied to the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 12, 2024 at 6:47 AM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be...
Jun 12, 2024 at 6:39 AM -
bobbler liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 12, 2024 at 6:39 AM -
JellyBabyKid liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 12, 2024 at 6:17 AM -
JellyBabyKid liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If you wanted to push it and get really proactive then it could be used by better GPs to signpost help and when to think of it. The...
Jun 12, 2024 at 6:14 AM -
JellyBabyKid liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 6:11 AM -
JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To be honest, having a chat with a professional might just be what you need. I knew I was in trouble for a few years, but work,...
Jun 12, 2024 at 6:10 AM -
JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...
Jun 12, 2024 at 6:09 AM -
JellyBabyKid liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Not necessarily PROM specifically - as those just measure delivery of something but something simple and more appropriate annually that...
Jun 12, 2024 at 6:07 AM
