Recent Activity
Activity stream for all registered members at Science for ME.
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alex3619 liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:24 AM -
alex3619 liked Sean's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they...
Jun 13, 2024 at 2:23 AM -
Possibly James May liked Jaybee00's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 2:23 AM -
Sean liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 2:14 AM
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Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:12 AM -
Sean liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...
Jun 13, 2024 at 2:12 AM -
MrMagoo replied to the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:12 AM -
Sean liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...
Jun 13, 2024 at 2:12 AM -
Sean replied to the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they...
Jun 13, 2024 at 2:11 AM -
MrMagoo liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 2:10 AM -
MrMagoo liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I live. It went OK for a while. Then it...
Jun 13, 2024 at 2:10 AM -
MrMagoo liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 2:09 AM -
Sean liked alex3619's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
I had occupational health assistance. It failed. Such help is critical after many health issues, but while we still do not have...
Jun 13, 2024 at 2:07 AM -
Sean liked Yann04's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
I could see this being said by a BPS person. Imagine: but Long Covid is not a psychological illness, and such explanations of physical...
Jun 13, 2024 at 2:07 AM -
Sean liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
It could be a little more clear I guess: "but Long Covid is not a psychological illness, and such explanations of physical symptoms...
Jun 13, 2024 at 2:07 AM
