Recent Activity

Activity stream for all registered members at Science for ME.

  1. FMMM1 liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...

    Jun 13, 2024 at 11:04 AM
  2. SNT Gatchaman liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...

    Jun 13, 2024 at 11:04 AM
  3. NelliePledge liked Andy's post in the thread What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines 2024 Fox et al.

    Abstract Background An integral aspect of patient engagement in research, also known as patient and public involvement, is...

    Jun 13, 2024 at 11:04 AM
  4. SNT Gatchaman liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...

    Jun 13, 2024 at 11:03 AM
  5. Yann04 liked Sean's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the...

    Jun 13, 2024 at 11:03 AM
  6. Yann04 liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...

    IMG_3078.png Jun 13, 2024 at 11:03 AM
  7. Yann04 liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...

    Jun 13, 2024 at 11:03 AM
  8. Yann04 liked Nightsong's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].

    Some quotes from from a post to Agle's mailing list with details of the PI:

    Jun 13, 2024 at 11:03 AM
  9. Yann04 liked SNT Gatchaman's post in the thread Esther Crawley.

    Yes, only one of them is a professor of evidence-based medicine.

    Jun 13, 2024 at 11:00 AM
  10. Yann04 liked Trish's post in the thread Esther Crawley.

    Indeed, not just poles apart, planets apart. I'm not sure what planet Garner is on.

    Jun 13, 2024 at 11:00 AM
  11. Yann04 liked John Mac's post in the thread Esther Crawley.

    A very, very wide spectrum

    Jun 13, 2024 at 11:00 AM
  12. Yann04 liked FMMM1's post in the thread Esther Crawley.

    I gather, from what a neighbour has told me, that there's quite a bit of work involved in maintaining your registration - demonstrating...

    Jun 13, 2024 at 11:00 AM
  13. Yann04 liked FMMM1's post in the thread Esther Crawley.

    Yea - 1991 --- aged 24 (ish) would be DOB 1967 - 57ish. Of course some people enter medicine a bit later e.g. it was Jonathan's 2nd...

    Jun 13, 2024 at 11:00 AM
  14. Yann04 liked Dx Revision Watch's post in the thread Esther Crawley.

    Indeed and her colleague at the Bath Paediatric Specialist Chronic Fatigue service, Dr Jan Cribb, is also a psychiatrist: From Dr...

    Jun 13, 2024 at 11:00 AM
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