Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
I think you missed one in the sentence beginning "We’re making an exciting new sports series".
Jun 12, 2024 at 1:27 PM -
MrMagoo liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I blanked out the presenters mentioned. Janet is I think a producer or similar.
Jun 12, 2024 at 1:27 PM -
MrMagoo liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
Should you maybe respect her wish to not publicize the presenter? If you're trying to keep a productive dialogue with her, it won't help...
Jun 12, 2024 at 1:27 PM -
MrMagoo liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 1:27 PM -
MrMagoo liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 1:27 PM -
MrMagoo liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 1:27 PM -
MrMagoo liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 1:27 PM -
MrMagoo liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenters too just offering more info and being gently enlightening. As a Paralympian or someone...
Jun 12, 2024 at 1:26 PM -
MrMagoo liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 12, 2024 at 1:26 PM -
MrMagoo liked csinclair02's post in the thread : TV casting call for people living with ME/CFS.
Runners? What the hell. Even when my condition was very mild, I couldn't run.
Jun 12, 2024 at 1:25 PM -
cfsandmore liked RaviHVJ's post in the thread JAMA: Evidence Mounts That About 7% of US Adults Have Had Long COVID.
I find statistics like this slightly maddening - far more important than knowing how many people have experienced any symptoms 3 months...
Jun 12, 2024 at 1:22 PM -
LJord liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 1:19 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 12, 2024 at 1:19 PM -
MrMagoo liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 1:15 PM -
Simon M liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 12, 2024 at 1:14 PM
