Recent Activity
Activity stream for all registered members at Science for ME.
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JellyBabyKid replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 2, 2024 at 8:42 PM -
FMMM1 liked Adrian's post in the thread A question about mitochondria.
No and perhaps that means I'm talking rubbish - I thought I had heard people talking about the mitrocondria not performing correctly but...
Jun 2, 2024 at 8:36 PM -
FMMM1 liked Adrian's post in the thread A question about mitochondria.
I thought the idea that some were talking about was that its not the mitrocondria that are bad but the signalling to them so they are...
Jun 2, 2024 at 8:36 PM -
JellyBabyKid liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 8:36 PM -
JellyBabyKid liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:35 PM -
Yann04 liked ME/CFS Skeptic's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
Thanks for the explanation @MelbME although I must admit that I still don't fully get it. If the problem is the large variation in mice...
Jun 2, 2024 at 8:34 PM -
FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:33 PM -
FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The monitoring should be possible, but what would you do with it? For asthma and diabetes we have well documented treatments that...
Jun 2, 2024 at 8:33 PM -
FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Detailed recording ought to be useful for research but the issue here is how people should be assessed in routine practice. Until we...
Jun 2, 2024 at 8:31 PM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 8:31 PM -
Hutan liked Binkie4's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Fantastic! This research team means business. I am so disappointed that I visited New York ( to see my son) last November, contacted...
Jun 2, 2024 at 8:23 PM -
Hutan liked SNT Gatchaman's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Discussing their unpublished results in purified IgG transfer from acute Covid and long Covid patients to mice — "So we're very, very...
Jun 2, 2024 at 8:22 PM -
Trish liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:19 PM -
Trish liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:19 PM
