Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked SNT Gatchaman's post in the thread Open Medicine Foundation (OMF).
Is the effect purely related to volume expansion (correcting pre-load failure / reduced pre-load reserve) or is there a secondary effect...
Jun 2, 2024 at 10:28 PM -
Missense liked Tao Fogger's post in the thread Open Medicine Foundation (OMF).
I don't have POTS (though I do have OH) but also react in much the same way as Milo with epinephrine in dental anaesthesia.
Jun 2, 2024 at 10:28 PM -
Yann04 liked SNT Gatchaman's post in the thread Open Medicine Foundation (OMF).
Is the effect purely related to volume expansion (correcting pre-load failure / reduced pre-load reserve) or is there a secondary effect...
Jun 2, 2024 at 10:28 PM -
Missense liked Milo's post in the thread Open Medicine Foundation (OMF).
I do have POTS. I assume I was already on Atenolol at the time it happened, early in my disease onset. POTS came in the package deal.
Jun 2, 2024 at 10:27 PM -
SNT Gatchaman replied to the thread Open Medicine Foundation (OMF).
Is the effect purely related to volume expansion (correcting pre-load failure / reduced pre-load reserve) or is there a secondary effect...
Jun 2, 2024 at 10:27 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread UK: New advocacy resource for people with ME in hospital.
Isn't there a n FND society, probably run by Jon Stone, though? Sharpe has the support of the Royal College of Psychiatrists and even...
Jun 2, 2024 at 10:27 PM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
It certainly is interesting. Do you have POTS? The tachycardia in POTS is driven by epinephrine.
Jun 2, 2024 at 10:27 PM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
I wouldn't rule it out. I just don't think we know enough as to why saline is beneficial. I mean it directly improves the functioning...
Jun 2, 2024 at 10:27 PM -
Peter Trewhitt liked forestglip's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
Ok, I made something: https://me.comprehensibleinputwiki.com/index.php?start_date=2024-06-01&end_date=2024-06-02 I made it so it will...
Jun 2, 2024 at 10:27 PM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah they are aware of this. I spoke to them about it several years ago. At the end of the day the Rituximab trial failed to show enough...
Jun 2, 2024 at 10:27 PM -
RedFox liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Absolutely, that's why it needs renaming and possibly reframing. But it's a thing, and acknowledgement of it would be useful—albeit...
Jun 2, 2024 at 10:27 PM -
RedFox liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
spot on. ALthough I'd be careful with the time theft one. I can see the behaviourists - who spread rumours about all sorts of people...
Jun 2, 2024 at 10:27 PM -
Missense liked Eddie's post in the thread Open Medicine Foundation (OMF).
I would really like more work to be done on orthostatic issues. For me this is one area where I think progress can be made with just a...
Jun 2, 2024 at 10:27 PM -
Peter Trewhitt liked Yann04's post in the thread Open Medicine Foundation (OMF).
I would be very happy to have health insurance reimbursed Gazpacho prescriptions. :)
Jun 2, 2024 at 10:26 PM -
Missense liked Milo's post in the thread Open Medicine Foundation (OMF).
This may be a bit off topic but if you (or collaborators) are looking for research leads, I know of many, too many pwME that have a...
Jun 2, 2024 at 10:26 PM
