Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked OrganicChilli's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
I don't know if I get cognitive PEM because all my cognitive work takes place using a laptop. What I thought was cognitive PEM turned...
May 20, 2025 at 11:47 PM -
bobbler liked Jonathan Edwards's post in the thread ME/CFS as a biological information processing problem.
One thing that I think is worth keeping in mind is reflex algodystrophy. This is a gross tissue pathology that appears to be dependent,...
May 20, 2025 at 11:47 PM -
alktipping liked hotblack's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
Two instances of fairly short lived PEM earlier this year that I have some notes from. One from physical activity (sitting up and moving...
May 20, 2025 at 11:47 PM -
bobbler liked Utsikt's post in the thread ME/CFS as a biological information processing problem.
How can e.g. objectively very low levels of stimuli like light or sound cause PEM in the very severe, then? Are those taxing enough...
May 20, 2025 at 11:46 PM -
bobbler liked Jonathan Edwards's post in the thread ME/CFS as a biological information processing problem.
To be honest, my thought here is that nothing really fits - nobody's theory adds up. We need to understand some form of interaction...
May 20, 2025 at 11:46 PM -
alktipping liked hotblack's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
For me the thing that changes the most is the underlying trend of how good or bad I am. Then physical or mental triggers are a layer on...
May 20, 2025 at 11:46 PM -
Kitty replied to the thread ME/CFS as a biological information processing problem.
:rofl: It IS weird, but it wouldn't be hard to grasp if people just listened. If sleep were a luxury you could do without, like...
May 20, 2025 at 11:46 PM -
bobbler liked Jonathan Edwards's post in the thread ME/CFS as a biological information processing problem.
Reductionism is a word philosophers use almost exclusively for theories they personally find distasteful and not in line with their own...
May 20, 2025 at 11:45 PM -
alktipping liked Yann04's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
Yes. More tatchycardia diziness etc
May 20, 2025 at 11:45 PM -
alktipping liked Utsikt's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
I do. I’m bedridden, but can use the bathroom on my own. OI is a lot worse when in PEM, regardless of the cause.
May 20, 2025 at 11:45 PM -
bobbler liked Jonathan Edwards's post in the thread ME/CFS as a biological information processing problem.
Note that although we have treated RA on the basis that we think autoantibodies are causing inflammation by forming complexes and...
May 20, 2025 at 11:45 PM -
alktipping liked Snow Leopard's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
Do you experience exacerbation of issues on standing either POTS or OI? During post-cognitive PEM
May 20, 2025 at 11:45 PM -
alktipping liked chillier's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
I'm always on the cusp of a sore throat at any one time, it comes and goes like the weather. With cognitive activity it tends to stack...
May 20, 2025 at 11:45 PM -
alktipping liked Yann04's post in the thread Mental activity causing physical PEM, specific symptom patterns?.
For me, completely the same, unseperable. They felt different when I was mild, but thinking back that’s only because physical activity...
May 20, 2025 at 11:44 PM -
alktipping liked rvallee's post in the thread Review Cognitive Interventions and Rehabilitation to Address Long-COVID Symptoms: A Systematic Review 2025 Hilton et al.
It isn't just the rehabilitation paradigm that is useless, it's also the entire assessment process. Especially the use of "significant",...
May 20, 2025 at 11:43 PM
