“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters (2017) Lian et al.

Cheshire · Oct 31, 2017

Olaug S. Lian & Catherine Robson
International Journal of Qualitative Studies on Health and Well-being

Abstract
Purpose: Clinical encounters related to medically unexplained physical symptoms (MUPS) are associated with high levels of conflict between patients and doctors. Collaborative difficulties are fused by the medical uncertainty that dominates these consultations. The main aim of this study is to explore the interactional dynamics of clinical encounters riddled by medical uncertainty, as experienced by people living with long-term medically unexplained fatigue in Norway.

Method: A qualitative thematic analysis of written texts from 256 study participants.

Results: We found that patients experience being met with disbelief, inappropriate psychological explanations, marginalisation of experiences, disrespectful treatment, lack of physical examination and damaging health advice. The main source of their discontent is not the lack of biomedical knowledge, but doctors who fail to communicate acknowledgement of patients’ experiences, knowledge and autonomy. War metaphors are emblematic of how participants describe their medical encounters. The overarching storyline depicts experiences of being caught in a power struggle with doctors and health systems, fused by a lack of common conceptual ground.

Conclusion: When physical symptoms cannot be detected, explained and managed by biomedical knowledge and technology, good doctor-patient partnerships are crucial. Without clearly acknowledging patients’ perspectives and capabilities in clinical practice, such partnerships cannot be achieved.
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http://www.tandfonline.com/doi/full/10.1080/17482631.2017.1392219

https://twitter.com/user/status/925411360502149120

benji · Dec 22, 2018

What does this mean?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5654014/

benji · Dec 22, 2018

Has it been retracted or not?

alex3619 · Dec 22, 2018

It has been retracted, but its not clear why it has been retracted.

Arnie Pye · Dec 22, 2018

This paper was retracted but was then published again - but I can't find the reasons for this :

https://www.tandfonline.com/doi/full/10.1080/17482631.2017.1411003

The paper was published again here :

https://www.tandfonline.com/doi/full/10.1080/17482631.2017.1392219

which is the same link as was given in the first post.

adambeyoncelowe · Dec 22, 2018

Looks like it was published at the wrong time, and they've republished it correctly.

rvallee · Dec 23, 2018

adambeyoncelowe said: ↑

Looks like it was published at the wrong time, and they've republished it correctly.
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Seems like it:

A number of articles were erroneously published in the issue 12(S2) of International Journal of Qualitative Studies on Health and Well-being. Now, these articles are being republished in issue 12(1). The articles that were republished in the issue 12(1) are listed below:
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benji · Dec 23, 2018

Thank you all. It is a good study for us, it documents that we are maltreated.

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“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters (2017) Lian et al.

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“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters (2017) Lian et al.

Cheshire Moderator Staff Member

benji Senior Member (Voting Rights)

benji Senior Member (Voting Rights)

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