Submission from RACGP to NHMRC in response to the scoping survey for the development of clinical practice guidelines for ME/CFS: Link | Full...
Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a worldwide challenge. There are an estimated 17-24 million patients...
A very useful paper. A few initial comments after a skim through: The authors use 3 UKB PQ questions as proxies for PEM: "Do you get tired...
I was able to download the two PDFs. This gives a flavour of the content: [ATTACH] These documents are full of obvious pseudoscience. Just as...
There's now an article in the Times about this effort.
"Scientists call for research hubs to solve mystery of ME" (The Times, April 27 2025) Chronic fatigue syndrome affects about 400,000 people in the...
https://www.actionforme.org.uk/may-joint-me-and-lc-appg/
I've searched on PubMed, Scopus, EBSCO and haven't found a relevant publication. In the recent Clarke review of biomarker studies there are these...
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Abstract: Whilst myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has recently attracted high-profile media coverage, dominant accounts...
The letter from the 9 researchers is especially interesting, particularly around the challenges with MRC. Open criticism of reviews as "highly...
Further coverage of the Ponting et al Unequal access paper: there's a story in the Mirror, & also this in the print edition of the Times today:...
Now published: Link | PDF (BMC Public Health, April 2025, open access)
"ME sufferers ‘feel invisible and ignored’ amid lottery of NHS care" (The Times): Link | Archive link
Abstract: Background Long COVID is a complex, heterogeneous syndrome affecting over four hundred million people globally. There are few...
Also a summary of this research in Nature Metabolism's "News & Views" section: https://doi.org/10.1038/s42255-025-01274-1
May be worth mentioning: in a recently posted review in the Science Signalling journal it was noted there is some evidence that insulin resistance...
Beentjes is the preprint "Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity": MedRxiv link | S4ME...
Abstract: Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a long-term illness with no treatment options that address...
From CFS: A Review of Epidemiology and Natural History Studies (Jason et al, 2009): [10] Jason LA, Richman JA, Rademaker AW, et al. A...
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