Video from Laurie Jones, executive director of #MEAction, inviting folks to join the SOS protest: https://www.youtube.com/shorts/TzUC4kRWLLA...
From #MEAction Scotland: Millions Missing Scotland 2025: Red alert for ME See the full post for actions you can do to support this effort....
New post from #MEAction with an image to share on social media: Share This SOS Image On Your Socials Link to #MEAction's account on Bluesky =...
News in brief posts for the week of April 21 - 27: Mastodon Bluesky
I completely agree! The good news is that you can see works by one of the artists with Long Covid online. I follow them on Mastodon which is how...
The Artworks Center for Contemporary Art (ACCA), located in Loveland Colorado, is hosting a Long Covid art exhibition: And Still It Remains: A...
News from the #MEAction Georgia chapter #MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai Here's the direct link to the TEDx talk on...
From #MEAction UK: SOS: Save our Science A few quotes:
Millions Missing SOS - Storytelling Training session Sunday, April 27 Noon Pacific Time / 3 PM Eastern Time "Expert storyteller, Kirsten...
I don't know the reason behind using a saline IV after a tilt table test (head up tilt) but I'll share a personal experience. After I passed out...
Small study, but I thought it was interesting how well N95 respirators worked without any fit testing. I remember at the beginning of the pandemic...
News in brief posts for the week of April 14 - 20: Mastodon Bluesky (made these posts on Sunday, finallly posting the links here today)
Here's a helpful document about protesting from #MEAction - How to protest with with ME And other Energy-Limiting Chronic Diseases (PDF file) I...
Finally responding to this, hope it helps and is not too late. Symptoms: My main orthostatic intolerance (OI) symptoms are nausea, increased...
So, I've tried to gather my notes and my thoughts (ha!) from the Millions Missing planning meeting. Here are a few bullet points, no particular...
Yes, PEM makes my sleep much worse - no trouble falling asleep, but I don't sleep well, and I wake up many times during the night.
News in brief posts for the week of April 7 - 13: Mastodon Bluesky
Wheneve I see any study about the effects of caffeine I wonder about differences in how people metabolize caffeine. Hasn't the impact of caffeine...
I have not forgotten about posting a few notes from Thursday's planning meeting but I have not been able to do so yet. I'll try to do that soon!...
Crossposting this information which was posted in the #MEAction news forum - #MEAction web page for Millions Missing 2025: Millions Missing 2025...
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