Just flagging the following post on the upcoming Solve ME webinar because it seems to be happening in about 2hrs time, and whilst it might not be...
Tonight 11pm UK from what the translation tells me, it's 3pm PT/6pm ET Happening today! https://ow.ly/1Tih50VumPR There's still time to sign up...
But also A grade insight - I sensed there seemed to have been a big sea-change a few years ago where the profession was going to start being asked...
maybe the clue is in the following quote that @Utsikt flagged.... my bolding? As we know from responses which as I remember specificially...
That is interesting choice of wording/re-ordering of words from Karla Soares-Werner there: “It [patient involvement] ensures that our reviews are...
I agree but when I think of that suddenly being switched on then I think of what happened in the USA and what we saw with the Dutch? was it 'Zon'...
Agreed. For once the correct subjects/sample are getting studied - let's hope it is the beginning of the right questions and people being looked...
I'm worried to see this too. When I think about the times I was moderate but younger and didn't know about PEM specifically I absolutely knew that...
And a further on this point about research needing to be combined with clinics/ access to patients that needs to be flagged: It is vital that...
Agreed
agree
Important point
Interesting. do you have more details on it/what was proposed or intended and when vs what happened and how?
Good point
That is so bad.
This is interesting and good points thank you. the Germany point is particularly interesting - do you know what the things that really worked...
Agreed it’s the meat on the bones that needs to be checked to make sure it isn’t an inadvertent step back/problem, not the vision and mission...
Agree - people can have needs and other commitments that mean they don’t have that choice. I also don’t know what the norm is re other...
Agreed. And your point 6. And thinking of current things underway like decodeME, sequenceME and now I’m going to stop naming individually because...
I’m intrigued to actually probe more into what really is the accurate situation here and how it works in these particular subjects. how many of...
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